All posts by James

James worked on-and-off as an LPN for over 20 years. In 2014 he completed a bridge program and became an RN. James became a hospice nurse in January 2015. He lives in the Kansas City area with his wife of over 30 years, 4 daughters and 2 sons in law.

Avoiding Hospice Burnout: Part 4

If this is your first time joining this series, I would encourage you to visit the page dedicated to this series so you can start from the beginning. Please click anywhere in this paragraph to get full context.

I have been blogging for over 12 years over multiple web sites and a variety of subjects. My blog posts have always been about what I am currently learning, or what I have learned. This has been my strategy over the years to keep my readers from feeling like I’m talking down to them or lecturing them. For this series, I have deviated from that practice. Some readers have continued to embrace what I am sharing, and some readers have expressed concerns. Concerns that I am being condescending.

All I have to offer is this; I truly want to see everyone succeed at this work. It’s my heart’s passion. I have never felt so committed to a profession in my 30 years of employment. I hope every reader who joins this series can understand that I am desperate to help you. I want you to stay in hospice and love it as much as I do. Please continue to read. Contact me if you need help. I’m here for you!

Today I will address the biggest question that I have been getting throughout this series. Today we will engage how to manage our day-to-day activities with the goal to help us be done every day by 5pm with next to nothing left to do.

I do need to add a disclaimer. This could be said for every post. Maybe when I draw this series to an end, I will update every post with this disclaimer.

I do a lot of education at my current company. I start every training explaining my 90% principle. I explain that this stuff works 90% of the time. This means that there is always outlier situations that don’t fit in this nice little package I have created. Don’t let the 10% keep you from experiencing the 90%.

Okay, let’s get started!

Plan our work. Work our plan.

I mentioned in my first post the importance of intentionality. Intentionality is being proactive. No more letting our day happen to us. Today, we will focus on how we can happen to our day.

1. New schedule every week

Our weekly visit schedule is like our financial budget. No two months are alike. Every month our finances look different. Our electric bill changes based on the seasons. Birthdays come and go. Back to school shows up, and it is time to get new clothes and supplies.

It is the same with our visit schedule. No two weeks should look the exact same.

I’m not saying to totally revamp our schedule every week. The problem is that it gets really tempting to just keep our schedule the exact same every week. When someone dies, we just plug a new patient into that open spot. We do it without even considering time and distance. We have a caseload full of patients that are very used to specific days and, sometimes, specific times of the day. Now we are dragging ourselves all over our service area trying to get it all done. When we take a day off, some other poor nurse has to try to fill in and they crash trying to get it all done. Don’t be afraid to reach out to a patient/PCG and tell them, “Hey, I have to move you to Tuesday/Friday due to caseload changes. There is no reason to have a 10hr day Monday and a 6hr day Tuesday.

2. Start early

Over the years I have worked with multiple nurses who didn’t get to their first visit till 9:30am-10:00am. When I would quiz them about their start times, I would generally get the same response.

“It takes me a while to set up my day.”

“Set up your day? What is that?”

”Calling the pharmacy. Replying to text messages. Putting in orders.”

We cannot start today with finishing yesterday. Yesterday’s work must be done before starting today. Charting, phone calls, refills and emails from yesterday should all be done. You should be at your first visit according to company work hours. Our work hours are 8:30am-5:00pm. This means my nurses should be at their first visit by 8:30am. Showing up at 9:30am or 10:00am is a recipe for disaster. The most successful hospice nurses are finishing their second visit at 10:00am. Not strolling into their first visit.

3. Plan our day

We should not spend our entire day being surprised.

“Wow, I can’t believe how long that visit took!”

If we find this happening to us on a routine basis, there is a problem. When our day has 5-6 visits we need to have a plan.

Here is some self talk I would encourage all of us to engage in before the day even starts.

”I’ll be at Jones by 8:00am. Charting should be done and I’ll be in my car at 8:45am. Travel to Smith will be 20 minutes so that visit will be 9:05am-10:45am. Then I’ll head to Bubba who is 30 minutes away. I’ll be there from 11:15am-12:00pm.”

Visits for the day are half done, and it’s noon. Okay, one of those visits took a little long and it’s 12:30pm. Okay, it’s 1:00pm. Still, we have 4 hours to finish the rest of our visits. If we follow number 6 below we are through the toughest part of the day.

If most of our visits take 1.5-2.0 hours there is a problem. We should not be in and out of crises all day. I will address super long visits in a future post.

4. Everything at the bedside

I addressed this a little in my second post. I’m going to expand on it today. Even with a full day, we have got to make sure to do everything for the patient while we are with them, or in the car, but mostly with them.

Call the doctor while with the patient.

Call the pharmacy while with the patient.

Call the equipment company while with the patient.

Enter new meds in the EMR while with the patient.

Enter new visit frequencies while with the patient.

Eat lunch while with the patient. Okay, don’t do that, but you get the point.

This makes a big difference. We are less likely to forget stuff when we do it all while with the patient. The patient and caregiver know it was done as well. This provides them with peace of mind. They are less likely to call after hours wondering if something got done. They saw it get done!

5. Embrace the tension

This happens to all of us. It has been happening to me for years. The tension I’m talking about is this urge in our gut to get done with the current visit and leave for the next visit. It’s especially strong when we are making a lot of changes for our patient. We have to enter the meds, generate orders and write new HHA care plans. I know doing all this while with the patient sounds impossible. It’s not impossible.

The tension and pressure we are feeling in your gut can help us if we embrace it. It will push us to become faster with our EMR.

I’m on my 5th EMR in 6.5 years. I have used Suncoast, HCHB, CPC, Netsmart and Healthcare First. I have trained myself to do everything at the bedside for all of them. I pushed past that tension with every EMR until I got super fast at clicking all the boxes and locking everything. Three weeks ago I did 27 visits and charted everything at the bedside.

The tension is a great instructor. Let it make you fast!

6. Start with our sickest patient

Every day needs to begin with our sickest patients at the stroke of 8:00am. Our sickest patients take the longest. Patients who are transitioning or actively dying really need us early. Nobody in the home is sleeping. They have been waiting all night for us to show up. Waiting till later in the day to see these patients is a recipe for making our day too long and pushing us past 5pm. It’s also rude.

The rest of our caseload and everyone’s visit times are inconsequential when we have patients in crisis. We have to contact everyone the day before and update them on the schedule change. Reasonable people understand when we explain one of our patients are in a crisis and needs us first.

Do the hardest work first. It’s the best thing, and it is what our patients deserve.

7. Don’t waste waiting

We actually do a lot of waiting in hospice.

We wait for medications to take affect.

We wait for the funeral home to arrive.

We wait for the doctor to call us back.

We wait for someone to pass while we are with them.

We should spend our waiting getting something done. Last year I took call on Christmas Eve. One of my patients died, and I did the death visit. I was there from 11pm to 2am waiting for the funeral home to arrive. I found a quiet corner and worked on everything I could think of. I got all my IDT/IDG notes done for the following week. I wrote out a couple recertification notes. I got a lot done.

While we are waiting with our patient, we should stay busy! Don’t waste waiting! Step out and make a phone call. We should open our device and do something. Do anything! Just don’t waste waiting!

In closing I need to address how organizations get in the way of their nurses trying to integrate all of the above.

How about the beloved morning “stand up” call at 8:30am? I hate these things, but many organizations require them. If your organization requires a stand up or stand down call every day, you are forced to work around it. You may have to see your first patient at 7:45am so you have one visit out of the way. I don’t love this idea, but I would rather start earlier than work later. Starting early doesn’t interfere with my family life like starting late does. If your organization is giving you 8 or more visits a day, and telling you to chart at home, I don’t see how you can do much of the above. You are in an impossible situation.

I have integrated several ideas into one post here. Embracing the tension is probably the biggest take away. Let the tension force you to become fast on your EMR. Being quick with your documentation is essential in hospice care.


Visit The Hospice Nursing Community for more assistance in avoiding hospice burnout.

Whatever you say, James

You never know what your first visit with a patient will be like. I’ll never forget my first visit with Earl. He was living with his wife in downtown Kansas City. They had lived in that house for over 50 years. Most of the houses around them were either vacant or in complete disrepair. Walking in the front door was like traveling back into the 1960s.

I don’t think he really wanted to be on hospice. I think he did it because that’s what his wife wanted.

”How is he doing?” I asked her.

”Oh, I don’t think he’s doing very well, but I better stay out of it.” She replied.

I performed my assessment. I asked if he had pain. He said yes. I offered medications. He said no. It went on like this for the first 2 weeks. We spent most of our visits watching TV. It was either a Royals game or poker on ESPN. Always sports. After a few weeks we started making commentary on what we were watching. Nothing deep or specific. Just a couple guys watching TV. I can still hear his voice in my head. He sounded like Lewis from Christmas Vacation when he was telling Bethany to “say the blessing.”

”Who do you think is going to win?” I would ask.

”I don’t know, James. This is some really bad baseball.” He would respond.

After a couple months he started agreeing to my suggestions. I’d spend the first 30 minutes just watching ESPN with him. At some point I would start with my assessment. He was getting weaker, and I think he knew it. One day I asked him if I could get something delivered to truly address his pain.

”Whatever you say, James.” Became his response.

Each visit I would address something new, and his response became standard.

”Whatever you say, James.”

”Your blood pressure is getting low. I think we need to decrease your medicine.”

”Whatever you say, James.”

“I think you need to take your pain medicine twice a day.”

”Whatever you say, James.”

One day his wife caught me on the front step of their home before I went in. She told me that he had fallen several times since my last visit. She explained that, since his last fall, she had been pushing him around the house on his seated walker.

”Don’t let him know I told you. He would be so embarrassed.”

I sat down next to him. His color was different. He was so pale.

”You don’t look so good, my friend.”

”I don’t feel so good.” He replied.

”Listen, let me get you a hospital bed in here. That way you can relax while we watch ESPN together.”

”Whatever you say, James.”

I had the hospital bed delivered that evening, but it just sat there the rest of the week. The following week I got a call from his wife.

”You better come early this week, James. I can’t get him out of his chair. He’s been in it all day.”

I shuffled some visits around and made my way to their house. He was very drowsy, and I knew we were getting close to the end. I walked over to him and sat down.

”How are you feeling today?”

”Not very good, James.”

“Can I help you get into bed?”

“Whatever you say, James.”

I helped him get into his wheelchair and pushed him over to the hospital bed set up in his living room. I lifted him into the bed and helped him get situated. His wife smiled at me in approval.

He died later that week.

Hospice is a heart job. I think sometimes we complicate things. Not everyone wants deep and complicated medical care. Not everyone wants a complex assessment with lots of big words and fancy solutions. Sometimes, our patients just want to feel normal.

Earl was really sick, and he knew he was sick. He didn’t want a nurse who was also his friend. He wanted a friend who was also a nurse. For Earl, friendship had to come first. I joined in on what he found important, and that gave me influence with him. I built trust, and he needed to trust someone before he would let them help him.

Eventually, I was able to give him and his wife what they needed through hospice care. I just needed to be patient and find out what Earl needed from me first.

I became the friend Earl wanted, so I could become the nurse he needed.

Avoiding Hospice Burnout: Part 3

You are reading part 3 of my series, “Avoiding Hospice Burnout.” If this is your first time reading this series, please visit my first post by clicking HERE. This will help you get a quick overview and the foundation for this series.

Since the title of this blog is “Confessions of a Hospice Nurse,” I thought I would start this week’s post by making a confession.

I have a hero complex. I really do. I want to save everyone. Not from a medical or spiritual standpoint. I just want to be everyone’s hero. Hospice can really feed this desire. I get to show up to someone’s house and be the hero. I’m the center of attention when I walk into the room. I sit down. Everyone gets quiet, and they wait to hear what I have to say. A lot of the time, I have undivided attention. Everyone hangs on everything I say. They want to know how long their loved one has to live. They want to know what medications fix their issues. For a few short minutes I have all the answers to all the problems. I can even predict when someone is going to die.

I am powerful.

Replace Yourself

Nurses are natural caregivers. Hospice nurses are a whole new level of caregivers. We walk in to some of the most demanding and challenging situations. We feel it is our duty to help bridge any and all challenges we encounter. We trained for this. This is what we do. We look for the problems, and our brains start running at break-neck speed to find the solutions.

The desire to have all the answers and solve all the problems is a major contributor to hospice burnout among nurses. It causes us to attempt to fix too many problems and stay longer than we should. We become the center point. We become the one with all the answers. The home becomes dependent. They want our number. They want to call and text us after hours. They need us.

My first six months as a case manager in hospice were overwhelming. I felt responsible for everything that happened in the home when I was there and when I was not there. I felt responsible to be available around the clock as a resource to my families and patients. After all, I’m the hospice nurse. I know stuff!

Eventually I realized something. I am not the hero in everyone else’s story. That is not what hospice nursing is all about. Hospice is supplemental care. It is our job to empower our caregivers to be the hero in their own story. They are caring for someone who, at one point, probably cared for them. I have sat with more than one daughter, wife, husband and son, looked them in the eyes, and said, “You can do this. I believe in you.”

How do we achieve this in practice? Let me provide you with some solutions.

  1. Never be critical of your caregiver. Nurses are critical thinkers by nature. Many caregivers are emotionally fragile. It’s a natural condition when caring for someone who is dying. We do this work all day long. This is usually their first time. If they have cared for someone at end of life before, it was probably a lot different, because no two deaths are alike. Even if your caregiver did make a big mistake, don’t focus on the mistake or be dramatic about it. Watch your facial expressions and your posture. It can send the wrong message.
  2. Reinforce good behavior. Be sure to focus on all the great things your caregivers are doing. Even if they are struggling in many areas, point out how well they are doing in other areas. It’s okay to lie a little. They are doing the best they can given the situation. Remember, we are there for a few minutes a couple times a week. Our caregivers live this every day. They are tired and stressed. They need to know that they are awesome!
  3. Turn off your work phone after hours. This is absolutely huge! We do not want our caregivers to become dependent on us. They should see us as part of a larger entity. They should believe that any nurse within our organization is capable of meeting their needs. They should expect and know to call “the main number” any time they have needs outside of regular business hours. Even if you use your own phone, do not reply after hours. I know it’s hard, but this is a must.

A few years ago I met the most amazing caregiver. He was adopted, and he never knew his birth father. One day he decided to try and find his dad. This amazing man learned his dad was living several states away, and he was homeless. He was able to get in touch with him, and he discovered his dad had terminal cancer. He had his dad transported back here to Kansas City to be his caregiver while on hospice. I cried at every visit because it was so beautiful. He cared for his father until he died.

Now that is a hero.


Visit The Hospice Nursing Community for more assistance in avoiding hospice burnout.

Avoiding Hospice Burnout: Part 2

You are reading part 2 of my series, “Avoiding Hospice Burnout.” If this is your first time reading this series, please visit my first post by clicking HERE. This will help you get a quick overview and the foundation for this series.

Today, we will be discussing what is the single biggest thing that causes burnout in hospice. Many readers are coming here from the Hospice Nursing Support Group on Facebook. This series was motivated in large part by many posts from that group. There is not a day that goes by where this is lamented. Today, we will address this directly. Hold on to your nursing cap, this is gonna get real!

Chart at the bedside

Okay, I can hear the moaning from the back row. I considered saving this for the very last post. I’m worried about how many readers I will lose after just my second article in the series. For some inexplicable reason, this concept gets mountains of pushback. Why would someone want to intentionally wait till the end of the day to do all their charting? Do you hate yourself? Do you feel like you don’t deserve a personal life?

Maybe we can call it “field charting.” This seems to help it land a little softer to some people. This concept encourages charting to be done before showing up to your next visit. This means you chart in the driveway or around the corner. I still don’t like it, because it results in less time with your patient.

Let’s take a few minutes to debunk a few of the reasons I hear for not charting at the bedside.

  1. “It’s rude to open my computer in front of my patients.” In my six years in hospice, I have been asked to not open my computer less than 5 times. Computers are a part of medicine now. They have been for 25 years now. I saw a cardiologist a few weeks ago. He had his computer out the whole time. Join the new millennium. Everyone else has.
  2. “I don’t have the time to chart during the day.” This is the least believable of all the reasons. What takes you 10-20 minutes while you are with the patient will take you 30-45 minutes at home. Home can be a full-time job for many of us. Husbands, wives, kids, friends and responsibilities pull at us the second we walk into the house. Home is absolutely the worst place to do your documentation. Many nurses end up in bed and chart from 9pm-11pm every night. What a disservice to your patients! What a disservice to your family. What a disservice to yourself!
  3. “This system is way too hard to use.” In my hospice career I have used 5 different EMRs. I have been able to successfully chart at the bedside with every single one of them including HCHB. This can be done on any system.

You’re here for help, and I want to help you. Let’s start by just being honest. In fact, you don’t have to even be honest with me. You don’t have to tell me the truth. You can lie to me all day long. Will you stop lying to yourself?

I have been in leadership for the last 4 years. I have ridden with many nurses, and I have watched them work up close. I have come to a simple conclusion. Nurses don’t chart at the bedside because they just don’t want to chart. There, I said it.

This honesty is your first step in overcoming this hurtle in your hospice career. Say it with me right now, will you? Are you ready?

“I’m not charting at the bedside because I just don’t want to chart.”

Look, I get it. None of us went to nursing school for the charting. None of us love it. Well, the crazy compliance nurses love it, but they are a different breed. Charting is a part of what we do, and hating it hasn’t got you very far, so it’s time to do something different.

Okay, now that we have that taken care of, let’s start anew. Remember when we talked about intentionality? This is where the work gets real. You have to become determined to be successful at this. You have to decide right now that you will make this a priority. If you want to avoid burnout, you have to start right here with charting at the bedside. This is step one.

Over the next few articles, I will address several ways to become successful at charting at the bedside. For now, I will leave you with one strategy that helps to address the first fear from above.

Many nurses when starting to chart at the bedside make the mistake of opening their computer the minute they walk into the home. They think to themselves, “I better get going on this right now, or I’ll never get good at charting with my patient.”

Don’t do this! Take the first 10-15 minutes of the visit to sit with your patient and their caregiver. Give them that undivided attention that we know they crave. It’s one of the reasons we got into this work. You will complete your assessment during this time. During conversation you will notice if they have a chronic cough or how short of air they get when talking. At some point, the conversation will become more technical. Use this moment as a reason to dig out your device and get started. If you have been using your system for any amount of time, you should be able to document a comprehensive assessment in 20 minutes and a focused assessment in 10 minutes.

As promised in my first article, here is how to identify if your organization is getting in the way. If your caseload is so large you have more than 6 visits in a day, your organization is in the way. If you have been trained to click and type in every single box for every assessment, your organization is in the way. Your comprehensive assessment should take 20 minutes and your focused assessment should take 10 minutes. Visits should last 40-50 minutes on average.

Feel free to comment and engage in conversation below in the comments. This is a robust concept, and it can’t be resolved with a single post. It takes time, effort and intentionality!


Visit The Hospice Nursing Community for more assistance in avoiding hospice burnout.

Avoiding Hospice Burnout: Part 1

I have been in hospice a little over 6 years. I have held just about every position an RN can have. I started in case management, but I have also been an admissions nurse and have performed hundreds of admissions. I have hundreds of hours on-call both evenings and weekends. I have several years of clinical director experience and have held the position of administrator. I am currently a clinical team leader in the Kansas City area.

I have witnessed many great nurses burn out and give up on this work. In this series, I hope to present many ways in which this can be avoided. Today, I will start with the most basic skill needed to avoid suffering from burnout.

Be Intentional

For this series, I (currently) have 12 different things we can do to help protect ourselves from burnout. They all require intentionality. Each of these items require more than just a desire to not be burned out. None of us magically survived nursing school. We had to be intentional every single day. We got up at a specific time. We knew our schedules, and we took them seriously. In the same way, we won’t magically avoid burn out.

I tell my nurses, “Your day doesn’t happen to you. You happen to your day.” Yes, there will be surprises, but we can’t be surprised all day long. Much of our day is predictable. We shouldn’t be spending most of our day saying to ourselves, “Wow, I never thought that could happen.”

Abraham Lincoln once said, “You can have anything you want, if you want it badly enough.” I’ll ask you now, “How badly do you want this? How badly do you want to stay with hospice? How badly do you want to avoid burnout? Your level of intentionality is the answer to this question. How purposeful you are willing to be is how successful you will be.

The concept of intentionality will be woven into every article I write on this subject. It is the foundation required to pull this off. Many of these concepts may seem impossible or at least too difficult to really pull off. They may be foreign to you, or something you have been told to do many times, and you have not been able to do them. If you are someone who naturally focuses on how something can’t be done, none of this will be of benefit to you. If you are willing to push yourself beyond where you are now, you can do this.

There are two kinds of burnout in hospice. There is work burnout and organizational burnout. You can love your company, but be exhausted with hospice. Your days are crazy. You can’t get your charting done. Your patients are high acuity. Your caseload is too high. You do love the company you work for, they treat you well and you like your leadership.

How will you be able to tell the difference? As you work your way through all of my posts, you should be able to identify whether it is your company or your bad habits causing the burnout. For an example; If I’m talking about time management, and you are trying to carry a caseload of 25 patients, it’s pretty clear that you are suffering from organizational burnout. They have put you in a place where failure is the only likely result. Even if you have an LPN/LVN at your side, this is a no-win scenario. I will try to address this with each article. I’ll help you decide if the problem is the company or your habits.

In closing, these articles are time tested. I was trained this way when I started working in hospice. These concepts have helped me avoid burnout. Right now, hospice is as challenging for me as it has ever been. I’m as busy as I have ever been, but I’m also as happy as I’ve ever been.

Will you take this journey of discovery with me? Will you allow me to invest in you? Are you willing to wipe the slate clean and engage these articles with a new sense of wonder for this work? It is so important for you to stay in hospice. Your patients and their families need you. The hospice community needs you. Your neighbors, friends and city need you. You can do it, and I want to help you get there.


Visit The Hospice Nursing Community for more assistance in avoiding hospice burnout.

Home is your first job

Work-life balance is one of the biggest challenges for hospice nurses. It’s so incredibly hard to turn it off when you get home.

I spend a lot of time trying to help my staff develop good habits. I try to explain to them the importance of turning off the work phone at the end of the day. I explain that we have on-call staff for a reason. I tell them, “Educate your families on calling the main number after hours. Teach them that you are not available in the evenings or on the weekends to field their questions.”

The absolute biggest key to having a work-life balance is completing everything you can while with the patient. This includes entering orders, calling the pharmacy, updating the care plan, writing IDT notes and absolutely charting and locking the visit.

I tell them, “When you get home, be with your family. Don’t be working! Your family needs you. Be there for them!”

My wife and I have been getting a lot done around the house this year. A lot of it we have contracted out. We got the HVAC replaced. We got two new garage doors put in, and we are about to get the house painted. There has been a lot to do. When I got home today, she had a short list of items for me to complete. After a couple busy hours, the work was done. I was ready to come inside and get cleaned up.

As I walked through the living room headed to the shower I told her everything was done for the evening. She said, “You can relax now. Your work is finished.” I looked at her and said, “I’m glad my second job is complete.” Without missing a beat she said, “Home is your first job.”

To those who work the hardest

My mother-in-law worked as a Certified Nursing Assistant for almost forty years. She retired about three years ago. Her last fifteen of those years was out in the community with Visiting Nurses. She loved her patients like they were her own family. When asked if she was going to become a nurse, she would just smile and say, “I want to be with my patients. Not spend all day doing paperwork.”

For forty years that is what she did. Rain or shine. Snowstorms and blistering hot summers. She was as reliable and hard working as anyone I have ever known. Her patients got the best care she could possibly give them. Any weekend we visited her; she would tell us stories of her patients. She would give them gifts, and they were always giving her gifts. She was their family, and they were her family.

Being a nurse’s aide can be a very thankless job. They don’t get the same accolades and praise the RNs, LPNs and Physicians get. They receive no recognition publicly for what they do. It’s just not glamorous work. 

What I have learned in my twenty-seven years of nursing is that nurse’s aides don’t even want that stuff anyway. It’s not why they do what they do. They just love the people they take care of. They see most of their patients like a mother or father. They see them like a brother or a sister. Someone who just needs their help, and they are eager to provide that help. Even if most of the rest of us find it either too physically demanding or just gross. They do it every day. All day long. Without complaint.

To all the nurse’s aides, thank you. Thank you for being the backbone of healthcare. Thank you for doing the dirty work and loving it. Thank you for rolling up your sleeves every day and making sure all our patients get personal hygiene care. Care that brings relief no medication can ever match.

Please join me in celebrating nursing assistants all over America during National Nursing Assistants Week.

It’s okay to die on Thanksgiving

Photo Credit: Laura D’Alessandro

This was the first time everyone was up. Usually, the grandson is asleep at ten in the morning. He worked the night shift at a local factory, and his wife spent the daytime with Mary. We usually started the day with simple conversation. Nothing serious really. Just a few minutes of acting normal. Something all of my patients seem to enjoy. They want a friend who is a nurse. Not a nurse who is a friend.

Today was different. I could tell our conversation would move straight to business. Observation is the best tool a hospice nurse possesses. She was a little more short of air than usual. Maybe she was anxious about the subject at hand. Her legs and ankles were as swollen as ever. There was no way she was walking very well these days.

I sat down and simply asked, “What’s up?”
She looked at her grandson and his wife. Then she turned her gaze to me and said, “I’m worried about something.”

“What are you worried about?” I asked her.

“It’s getting close to the holidays. I’m scared that I’m going to ruin everything for them.” She looked at her family and paused for a moment. “I’m afraid I’ll die on Thanksgiving, and the rest of them will be ruined forever.”

“Is it really that bad?” I asked her.

“What?” She responded.

“Is it really that bad? If every Thanksgiving for the rest of their lives they take a few minutes to remember the love they have for you. If every Thanksgiving for the rest of their lives, they take a few minutes to remember how much you loved them. Is that such a terrible thing?”

Her grandson and his wife had smiles on their faces. Mary looked at them and asked, “What?”

Her grandson spoke up. “Grandma, you don’t need that kind of stress right now. We love you very much. We don’t care when you die. We don’t want you to worry about when you die. We are going to think of you every holiday anyway. You have been such an important part of my life for so many years. We just want your final months to be as enjoyable as possible.”

“Listen,” I interjected, “Your grandson and his wife will be just fine no matter when you pass. Enjoy the time you have together, and don’t let the thought of passing on a holiday steal the joy of the moments you have between now and then.”

I finished the rest of my visit. She didn’t like taking medications, so we didn’t change a thing. Our visits were always more social than anything else. That’s what was most important to her.

Before I left that day, I reassured her that everyone would be just fine if she died on Thanksgiving, and that’s exactly what she did.

Building Rapport: All the time in the world

I thought it would be fun to do a series that teases out my strategies for building rapport with my patients and caregivers.

It’s easy to think of my job as a medical job. Legally, it is a medical job. The reality is that being an RN Case Manager is more about interpersonal communication than medicine. Most of my patients come into service with a lot of misconceptions regarding end of life care. They don’t understand the services provided by the Medicare hospice benefit. They don’t understand the medications we use. They don’t understand what to expect at end of life. This isn’t anyone’s fault. Most people just don’t have much experience with death and dying.

I discovered that if I don’t build rapport with my patients and caregivers quickly, I become frustrated when I’m met with resistance as I introduce new concepts.

For my first installment, I want to talk about “time.”

For the purposes of these posts, the words “patient” and “caregiver” are interchangeable.

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Time Machine
Time Machine

Imagine for a moment that you are a patient. Your nurse sees you one-to-two times per week. You are stable, but your doctor has put you on hospice. Your nurse calls you on the phone and tells you, “I’ll be there in twenty minutes to see how you are doing.”

It’s been two weeks since you started service with hospice. You like your nurse. He’s friendly and polite. He always greets your pets and takes a minute to show them some attention. He just always seems to be in a hurry. He barely gets to a chair before he pulls out his computer, stethoscope, blood pressure cuff and oxygen saturation monitor. He asks a few questions from his computer, the same questions he has asked every other visit. He attaches the battery-powered blood pressure cuff to your wrist, puts the oxygen monitor on your finger and listens to your lungs, heart and abdomen all at the same time. He types for a few minutes longer, but as soon as the room gets a little too quiet, he asks if you have any questions, excuses himself and goes out to the car where he spends another 20 minutes doing whatever it is hospice nurses do in their car.

That is how I did my visits in my second month in the field. My first month was the polar opposite. I would spend two hours at each visit trying to fix every single problem I could find. It was exhausting. I changed to the above strategy when I realized that I can’t fix every single problem during every single visit. The fast visit is very time efficient. I can make lots of visits in a single day. The problem was that when my patient began to decline, I had no relationship so they were still struggling to trust me. It was when I began to move into the third month of work that I learned my first strategy for building rapport with my patients.

Act like you have all the time in the world.

I know it sounds silly and maybe even impossible, but it is a powerful tool in building rapport with your patient. After I enter the home, and greet the pets, I find a place to sit. I put down my bag and just relax with my patient for a few minutes. My goal is ten minutes without doing anything medical. I allow the patient to direct the conversation. Sometimes they go straight to the medical issues at hand. Sometimes they want to tell stories about their life. Sometimes they don’t want to talk about anything, they just like the companionship. The point is to give them the assurance that you have time for them. You want to give them the feeling that you could be there all day if required.

Compared to your patient, you do have all the time in the world. The average time that a person is on hospice is less than two weeks. This means that most of our patients will die within the first few weeks of coming on service. Most of them can feel how little time they have left. The biggest compliant that I have heard about other hospice organizations is that the patient felt like their nurse was always in a hurry. Being in a hurry is just plain insulting. It’s like saying, “Yeah, I know you’re dying, but I have stuff to do.”

Generally, as those ten minutes come to an end, my patient will give me an opportunity to start my assessment. They will come up with an issue or concern that will allow me to address the items on my check list. If they don’t bring up any issues at the end of the ten minutes, I can easily start a conversation based on what I have observed so far. Maybe they have been arching their back frequently during the visit. Maybe they have been coughing a lot. Maybe they have been pursed-lip breathing throughout the first ten minutes. By mentioning what I have seen so far, I am sending the message that I am engaged in the conversation, and I am paying attention. I have been assessing my patient for ten minutes and never said a word.

Now I have thirty minutes to address their concerns and do my charting. Like I mentioned in my story, I used to do a lot of charting in the car once the awkward silence crept into the room. I have found that I was the one who felt awkward. I think my patients like it when I stay in the home and finish my charting. I’ve never had someone ask me to leave. I think they like having the extra time with a medical professional who actually has time for them. They have felt like cattle being herded by an angry dog for so many years. No doctor office or hospital has had much time for them.

Isn’t it the right thing to do, at the end of their life, to give them the gift of your time?

The weight of information

Photo Credit: Peter Dondel
Photo Credit: Peter Dondel
A hospice nurse has a lot of information bouncing around in their head.

During my first two months of field work I can use the word “bombarded” to describe what it was like. I was bombarded with a lot of end of life experience. Certainly, end of life is what hospice is all about, but not all patients have a quick decline. When I look at my caseload now, there are only a couple of names I recognize from my first couple of weeks. This means that I have had a lot of experience with patients who are in a steep decline. It has been good for me because it has caused me to learn symptom management early in my hospice career.

It is a cliché, but with great knowledge comes great responsibility. With my increased experience it will be really tempting to walk into a home and try to pour out all the information I can in one sitting. I’m learning very quickly that the information I have in my head caries a lot of weight with it. I have already seen the look on the faces of a few caregivers who were given too much information in one visit. They just stare at me with a blank look on their face. They have been taken to a place where no information given them is being retained. A lot happens in the hours and days leading up to death. A lot of changes can occur with the human body. There are a lot of different things that can happen, but none of those changes are guaranteed. If I’m not careful, I will provide everyone with more scenarios than they can even begin to process. It’s my job to make sure that I don’t try to saddle my patient and their caregiver with too much information at once. It’s my job to give out the information I have in measured doses.

End of life is heavy. The information I carry around in my head is heavy too. My patients, and their loved ones, need a nurse who hasn’t turned his job into a collection of algorithms he applies to treat everything that can happen in someone’s last few hours on earth.

I need to be sure to stay in touch with the human side of what I do, or I will take an event that can be smooth and make it really complicated.